Happy Hour with Her ALS Story and “Hop” of Zac Brown Band
Here I chat with 39 year old, London based musician Jake Popyura as he navigates life with ALS while refusing to abandon his musical dreams.
Here I chat with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with ALS after being diagnosed in their 20's and 30's. John Driskell Hopkins of Zac Brown Band who is also battling ALS, joins the conversation. We discuss finding community, maintaining independence, and embracing joy despite a terminal diagnosis. Tina has familial ALS with the SOD1 mutation and has been living with it for nearly five years. Kelly was diagnosed two years ago, balancing motherhood and ALS. Mira had symptoms since age 14 but was misdiagnosed for years before her ALS diagnosis at 24. John (Hop) continues performing with Zac Brown Band and will play at the Sphere in Las Vegas in December. The ladies share their fun experience attending a retreat in Cape Cod with 40 other Her ALS Story members. I love how they each emphasize the importance of community over isolation when battling this terminal illness. Follow Her ALS Story and witness the incredible strength of this group. Join John Driskell Hopkins for Harmony for Hope on October 18th in Atlanta, a fundraising gala for ALS research featuring world-class singer-songwriters in an intimate format. Thanks for listening and sharing with a friend.
Hugs, Lorri
