[StructuredData]

Here I chat with four participants in I AM ALS's Peer Support Program about the value of this experience.

What does it really mean to have someone who understands what it’s like to live with ALS?  In this episode of I’m Dying To Tell You, we explore the power of ALS peer support and one-on-one connection with three I AM ALS Peer Mentors and the staff member who oversees the program.

We talk about what ALS peer mentoring looks like, how mentors support people living with ALS and their families, why shared experience can be so powerful and how connecting with someone who truly “gets it” can help people navigate the emotional and practical challenges of an ALS diagnosis.

If you or someone you love is living with ALS, newly diagnosed, caring for someone with ALS, or simply looking for connection and community, this conversation offers an inside look at how peer mentoring can remind us that we don’t have to navigate ALS alone.  We also chat about an upcoming virtual I AM ALS Open House where you can hear from all the community teams and explore all the ways to get involved and find your team.  Thank you for being here and sharing this episode with a friend.

Hugs, Lorri

←
About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!

Leave a Comment

You must be logged in to post a comment.