Four ALS podcasters. One honest conversation about grief, hope, storytelling, and why sharing our voices still matters.

In this special roundtable episode, I welcome three fellow ALS podcasters for a conversation about the stories that stay with us, the people we’ll never forget, and why a microphone can become a lifeline.

So happy to chat with Alison Burell-Stanley and David Stanley, hosts of I Lost My Person, who share how losing spouses to ALS eventually led them to friendship, love, and a shared mission of helping others navigate grief. Together they talk about remembering the people we’ve lost, saying their names, laughing at the memories, and discovering that joy and grief can exist side by side.

Cory Mosley, host of ALS Matters, offers the perspective of someone living with familial ALS while navigating the realities of treatment, advocacy, and uncertainty. He shares what he’s learned about turning overwhelming medical information into conversations that people can actually understand—and why stories often teach us more than statistics.

Together, we discuss:  living with grief while still finding joy, what listeners have taught us over the years, how podcasts create community when people feel isolated and more.

If this episode encouraged you, please subscribe, leave a review, and share it with someone who needs to hear these stories. Every share helps another family find hope.

Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!

Leave a Comment

You must be logged in to post a comment.