Diagnosed with ALS, former actor and model Andy Johnson is proving that even when ALS changes your body, it doesn’t have to change your sense of humor—or your zest for life.

Meet Andy Johnson, diagnosed with ALS at just 40—and determined not to let ALS define him.  I’ve been following him on Instagram as @AndyAtrophy, where his humor and ability to find the funny in life with ALS has me smiling.  In this conversation, Andy shares his journey from New York actor and model to husband, cyclist, storyteller and ALS advocate. We talk about humor, identity, marriage, the Tri-State Trek, and finding ways to keep living—and laughing—in the face of ALS.  Because ALS may be part of Andy’s story, but it certainly isn’t the whole story.  This is a conversation about ALS, but it’s really about living life on your own terms, finding reasons to laugh and remembering that a diagnosis doesn’t get to tell you who you are.   Thank you for listening in, recommending this to others and for being a part of this amazing community. 

Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!

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