After six years of knowing something was wrong, Sam Cunningham finally gets an ALS diagnosis at 35—and shares what it took to be heard, and how he’s redefining strength moving forward.

For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss that didn’t add up. As an athlete, he knew his body, but getting answers proved to be a long and frustrating journey. In this episode, Sam shares what it’s like to finally receive an ALS diagnosis at 35, the emotional weight of being both devastated and validated, and how persistence, detailed documentation, and the right clinician ultimately connected the dots. We also explore exercise and ALS, adapting to new limits, and how faith, mindset, and unexpected support are helping him navigate this next chapter.  Thank you for listening in.

Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!

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