Here I talk to John Carthum who has had ALS for over 25 years.

In this episode, I reconnect with a former colleague from Kraft Nabisco, John Carthum. It was a few decades ago when I heard John left the company for medical reasons. I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004. That’s when I learned that it was also ALS that John was diagnosed with in 1995. Now he is outliving the typical 2 to 5 year death sentence that comes with ALS, also known as Lou Gehrig's Disease. It's incredible that John has been living with ALS for 27 years now. I am so grateful that John decided to take me up on my invitation to chat for this episode. I knew his precious insights would be a blessing to many. Listen in and hear John share what it has been like living with a terminal illness with no cure for such a long time, how he and his wife decided to have children after his diagnosis and what keeps him living life to the fullest while struggling every single day. Thanks for listening in and sharing with a friend.

Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!


  1. Jay Price on March 20, 2023 at 9:07 pm


    Whay a great podcast. Thank you for recognizing the courage of my good friend John. Al’s for highlighting the courage and grace of his wife Lorri.

    I really appreciate your courage as well!

    I worked for Nabisco and Kraft too, I’m trying to remember you. Where in the country did you come from? I was in the Trade Marketing group with John when he was diagnosed.

    Anyway, good job.

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