Listen in as I talk to Leah Stavenhagen, 28, about her ALS journey and the "In Her ALS Shoes" movement she created.

"I was an active 26-year-old so why did I feel like my feet couldn’t quite keep up? She couldn’t find my knee-jerk reflex and suggested that I visit a neurologist. Naively, I didn’t understand why I was being referred to a neurologist over a podiatrist. This quickly changed. I learned that I had ALS and a 2-5 year life expectancy." That is from my guest, Leah Stavenhagen. In this episode, hear Leah share what it was like learning she had ALS, how it changed her perspective on life and how she's empowering other young women. Leah, 28, is leading a movement called "In Her ALS Shoes" where women who were diagnosed with ALS under the age of 35 are teaming up to support each other and to raise awareness that ALS can affect anyone. Please consider supporting this movement by sharing this episode. If you were diagnosed under the age of 35, share your story at link. Detailing your ALS story will help other young women feel connected, relatable and less lonely. Thank you for listening and sharing with a friend.


Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!


  1. Debi Shelby on December 23, 2021 at 4:47 pm

    I just read Leahs story and would like to email her. Is that possible? Debi Shelby Hamilton, Montana.

  2. Scott on December 23, 2021 at 7:32 pm

    I am a former immunologist and I have an idea. Could you try an autologous bone marrow transplant? If you could find a physician, usually an oncologist, to do the procedure. As part of the procedure, you should have all of your white blood cells killed off completely, including the microglia cells causing your ALS. After a complete ablation of WBC, you could receive back your bone marrow and this “might” extend your life; good luck!

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