Here I am on location in Boston to bring you a behind the scenes episode from ALS TDI's research lab, Annual Summit and White Coat Affair gala.

In this episode, I am sharing my weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS. I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research. I wrapped up the weekend by attending their White Coat Affair gala which is a powerful evening that brings together and honors those living with ALS and remembers those whom we’ve lost.

I catch up with 5 inspirational guests as we chat about the love, passion and hope behind the lab doors of this ALS research lab.

My conversations start directly in the lab as I talk to three scientists, Valerie Tassinari, Associate Scientist III, Anna, Gill, Associate Scientist III, Program Manager and Kyle Denton, Ph.D., Director, Cell Biology to find out what it means to work every day to discover treatments for those living with ALS.

Then I talk to Kevin and Tessa Geraghty, who are living with ALS and also attending the ALS TDI weekend events and ask them what it means to visit the lab and meet others fighting the same terminal illness.
Finally I chat with Carol Hamilton, Vice President of Development about unique ways to support their ALS research. I loved witnessing the special bond between those who work in the lab and those who they are trying to save. From all of us living with ALS, thank you for listening and sharing with a friend.

Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!


  1. Deborah Cunningham on November 2, 2022 at 11:16 pm

    On September 8, 2022 at the age of 65 I was told that I have ALS. Neurologist told me to go have fun. I have been supercharged at times and I am determined, for my grandchildren to whip this thing

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