In this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it.

Hear my conversation with the team that is bringing the first robot with ALS to the big screen. The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS. Sascha created the robot character Luka and wrote and illustrated his story to help explain to their children what’s happening with their dad who was diagnosed with ALS. Also in our chat is Toby Cochran, Director and Adrian Ochoa, Producer who are leading a professional animation team to bring this film to life. This film is both heartbreaking and inspiring and will create ALS awareness and help children and adults understand what ALS is. Sascha and Anjo wrote the story explaining the ALS disease with the help of the robot lights. This one of a kind short animation film will be made available for free on various media. In this film we get to know the little robot Luka. We see how everyday tasks get harder and how they find out Luka is ill and what this means for Luka’s life and environment. The film does not use words, but music, which makes it internationally applicable. I know this film will help so many families affected by this terminal disease. Thank you for listening and sharing with a friend.

Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!

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