Listen in on my chat with two young men 29 and 32, who already know an ALS diagnosis will be in their future. Hear their unique perspectives on life as they know a terminal illness is coming.

About 90% of ALS cases are completely random. Only 10% of ALS runs in the family and is known as familial ALS. My young guests have lost several family members to ALS. Daniel Barvin and Tucker Olson both made the decision to do genetic testing and have tested positive to a familial ALS genetic mutation. These guys open their hearts and share what it's like to find out they are gene carriers for a fatal disease with no cure. They open up about how this new information affects their outlook on life, future relationships, children, legacy and more.

Hugs, Lorri

Avatar

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!

Leave a Comment