Join me as I chat with four passionate volunteers celebrating six years of I AM ALS, a patient-led movement accelerating the fight for a cure and proving the impossible is possible every day!

Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope.  In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients.
Why is this so important? Because for far too long, those most impacted by ALS weren’t leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community, but also operating on the ALS clock—pushing for accelerated progress every single day.
Today, I’m thrilled to chat with four incredible volunteers, Tim Abeska, Cristy Hardin, Deb Winters & Randy Gregory Jr., about how I AM ALS continues to be driven by patient voices, advocating, empowering, and fighting to make ALS a thing of the past. We'll dive into the work of the I AM ALS Community Teams, their ongoing efforts, and how YOU can get involved in this powerful movement.
So, listen in and be inspired to join these teams of patients, caregivers, and advocates who prove that the impossible is possible—every single day.  Thank you for sharing this celebration.

Hugs, Lorri

About Lorri Carey

On Friday the 13th, February 2004 at the age of 37, I was told I have ALS. I’m dying from ALS, yet I’m so encouraged to live life to the fullest. I’ve been inspired by so much to stay focused on the positive. I’m dying to tell you about what gives me strength, makes me smile and keeps me hopeful – in hopes of inspiring you too!

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